OMS 2017 Caregivers' Conference - Agenda

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Agenda for 2017 OMS Caregivers’ Conference 2017

September 23, 2017 | Houston, Texas

 

7:30am-8:15am

Registration and Breakfast

 

8:30am

Keynote - Chloe Bruland (OMS Warrior), Mark Bruland (Father)

 

9:15am

Wendy Mitchell, Childrens Hospital Los Angeles

 

10:15am

BREAK

 

10:30am

 

Choose ONE of these parent-led breakout sessions

Session 1 OR Session 2

Understanding Schools, ECI, IEPs, 504 plans

Dealing with Behavior issues

Discuss best practices for providing the best education opportunities for the OMS warrior

Is the behavior issue due to disease, medications, or the parent?

Most caregivers struggle with this dilemma of effective behavior management as part of the OMS battle

 

11:30am

 

Mike Michaelis and Scott Milligen, NORD Registry and Analytics

12:00noon

Lunch

 

12:45pm

Tim Lotze, Texas Childrens Hospital

 

1:45pm Choose ONE of these parent-led breakout sessions
Session 3 - 1:45pm

OR

 

Session 4 - 1:45pm
Dealing with Relapses Mental Health / Parent Health
What does it mean if the patient is relapsing during treatment?  What about relapses in remission?  When to monitor and when to act? I'm so focused on the patient that I am not making time for my spouse or myself?  How do I make time for myself without feeling guilty?  How do I handle this marathon?

 

2:45pm

 

BREAK

 

3:00pm

Mark Gorman, Boston Childrens Hospital

 

4:00pm

Kitty Petty, Boston Childrens Hospital, and Diane Murral, Texas Childrens Hospital

 

5:00pm Wrap up