Our mission is to raise awareness of Opsoclonus Myoclonus Syndrome, maintain a support network for caregivers, and fund research for a cure.

2018 OMSLife Caregivers Conference

September 29th & 30th in Babson Park, Massachusetts.
Register Now
Raise Awareness of Opsoclonus Myoclonus Syndrome

Raise Awareness of Opsoclonus Myoclonus Syndrome

Providing information for doctors and patients to make the best decisions for the OMS patient
Support network for patients and caregivers

Support network for patients and caregivers

Providing social media and resource information for the patient
Fund Research for Opsoclonus Myoclonus Syndrome

Fund Research for Opsoclonus Myoclonus Syndrome

Providing funding for OMS research
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Online Donation

We understand that you want your donation to make a huge impact. At the OMSLife Foundation, we strive to make every dollar work for our OMS warriors. One way we do this is by minimizing administrative costs. Whether hosting our next caregiver conference, advocating our OMS patient registry, or even building this website, we always want to be mindful of the costs involved. And for 2018, we have an anonymous benefactor who will be underwriting our administrative costs so that every dollar you give will go to help our OMS warriors!

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If you are….

.... A Patient

.... A Patient

Fighting a rare disease can be scary.   We can help!
.... A Caregiver

.... A Caregiver

OMSLife can help direct you to OMS resources.
.... A Doctor treating a patient

.... A Doctor treating a patient

Maybe you need someone to give you a second opinion, or you are looking for data to support the treatment approach, we can help you find the resources needed.
.... A Researcher

.... A Researcher

We want to help find a cure for OMS.  If you are a researcher of OMS, movement disorders, or autoimmune diseases, let’s work together.

Dear Caregivers:

The International OMS Study Group will be meeting in March 2018 for its biennial International OMS Workshop.  At the Workshop, Scientists, Physicians and OMS Caregivers will meet to discuss research and related information pertaining to OMS.  We are asking for feedback on the Study Group’s Family Education Guide.  The Guide can be found on the “Documents” page of the OMSLife Website Caregiver link, on the “Documents” section of the OMSLife Facebook Page, and under “General Information” on the Resources Link of the Dancing Eyes Support Trust (DEST) Website.  As OMS patient caregivers, your feedback is extremely valuable to the Study Group and other caregivers.   Please take a few minutes to answer the questions on the Family Education Guide Survey linked below.  Your responses by March 10, 2018 would be greatly appreciated.
Thank you!
The International OMS Study Group