On behalf of The OMSLife Foundation, I wanted to offer a heartfelt thank you for your online purchases during Pirouline Cookie Company’s campaign. Your support has meant a lot to us. The mission of OMSLife is to spread awareness of Opsoclonus Myoclonus Syndrome, provide a support network for caregivers, and fund research for a cure. We are able to execute upon this mission with help from many supporters such as yourself.
Through the generosity of individual donors such as yourself as well as corporate contributions by companies such as Pirouline, we are able to make a difference. During our four short years of existence, OMSLife has hosted five regional caregiver conferences in Los Angeles (twice), Houston, Boston, and Cincinnati. We have provided thousands of dollars for OMS research funding to Dr. Michael Pranzatelli, Dr. Mark Gorman, Dr. Wendy Mitchell, and the Pablove Foundation. And, we have had the honor of co-hosting the International OMS Medical Conference in 2016 which brought researchers and clinicians from fifteen countries together.
And, we are only beginning!!!
We are planning our first National OMS Caregivers conference in 2017! We hope to bring in researchers, clinicians, and other experts from around the country to meet with our caregivers for a two day event. We have plans to fund more research for a cure. We will be co-hosting the 2018 International OMS Medical Conference. And finally, we are presently building a OMS Natural History Patient Registry thanks to a five year grant from NORD and the FDA.
We know that none of this can happen without the benevolence from our donors. You enable us to achieve our missions to help the OMS warriors and their caregivers and to fund OMS research. Thank you!
We would be honored if you would follow us on Facebook and share our posts with your friends and family. https://www.facebook.com/OMSLifeInformation/ And we gladly accept donations as we pursue our mission - simply follow the donation link on our website at www.omslifefoundation.org .
Take that OMS!!!