2018 OMSLife Conference – Boston – September 29-30
- Brian Cisneros – Keynote
- Dr. Wendy Mitchell (Children’s Hospital Los Angeles) – OMS: What we Know, What we don’t know”
- Dr Yasmin Khakoo (Memorial Sloan Kettering Cancer Center) – “Outcomes of Children with Opsoclonus Myoclonus Syndrome and Neuroblastoma: the MSK Experience 2000-2018”
- Dr Mark Gorman (Boston Children’s Hospital) – Effect of relapses on neuropsychological outcome in a multinational study of 81 patients with pediatric opsoclonus myoclonus ataxia syndrome
- Dr. Kiran Maski (presented by Dr. Mark Gorman) – SLEEP AND OMS
- Dr. Mark Gorman (Boston Children’s Hospital)- Pediatric Onset Opsoclonus Myoclonus Ataxia Syndrome (POOMAS) Registry: Progress towards an international registry
- Kitty Petty (Boston Children’s Hospital) – OMS Passport and Education Support
- Mike Michaelis (The OMSLife Foundation) – OMS Patient Registry & Natural History Study
- Sue Rossov (National Organization for Rare Disorders – NORD) – NORD: A 35 Year Journey: Advocating for the Rare Disease Community
