Conference Information

The OMS Life Foundation is committed to advancing knowledge, fostering collaboration, and building community through our specialized conferences focused on Opsoclonus Myoclonus Syndrome. Our conferences bring together the OMS community—families, caregivers, medical professionals, and researchers—to share the latest developments in OMS research, treatment approaches, and supportive care strategies.

Our conferences serve multiple vital purposes: connecting families with leading OMS specialists from around the world, providing educational opportunities for both caregivers and medical professionals, sharing cutting-edge research findings, and building a stronger support network for all those affected by OMS. These gatherings have become essential forums where groundbreaking research is presented, treatment protocols are discussed, and families find the support and information they need to navigate their OMS journey.

Whether you’re a parent or caregiver seeking the latest treatment information, a medical professional looking to expand your knowledge of OMS, or a researcher interested in collaborative opportunities, our conferences provide an invaluable platform for learning, networking, and advancing our collective understanding of this rare neurological condition.

Join us as we work together toward our ultimate goal: finding a cure for Opsoclonus Myoclonus Syndrome while supporting every family affected by this challenging condition along the way.

 

Upcoming Conferences

2025 LA Conference

Past Conferences

Below you’ll find presentations and materials from our previous conferences, providing valuable resources for the OMS community.

https://omslifefoundation.org/prior-conference-information