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The OMSLife Foundation

The OMSLife Foundation

  • About OMSLife
    • The OMSLife Foundation
    • FAQ
    • Our Mission
      • Raise Awareness
      • Support Network for Patients & Caregivers
      • Fund Research
    • Our History
    • Our 2026 Budget
    • Our Growing Patient Network
  • About OMS/OMAS
    • OMS/OMAS FAQ
  • Caregivers
    • Documents
    • Conferences
      • 2025 LA Conference
      • 2023 Chicago Conference
      • 2018 Conference
      • Prior Conferences
    • OMS Resources
  • Doctors
    • Treatment Standards
    • Severity Scale
    • International OMAS Medical Workshops
      • 2022 Workshop (Abingdon)
      • 2025 Workshop (Oxford)
      • 2018 Workshop (Abington)
      • 2016 Workshop (Abingdon)
  • OMS Registry
    • Register
    • Survey Results
    • Analytics – Trio Health
    • Publications
    • Conference Poster Sessions
      • 2025 CNS
      • 2024 ISPOR
      • 2023 NORD

2017 OMS Conference – Houston – September 23rd, 2017

  • Opsoclonus Myoclonus Syndrome – Diane Murrell (Texas Children’s) and Kitty Petty (Boston Neurology)
  • OMS Patient Registry – Natural History Study – OMS Life Foundation
  • How To Help Support Your Child With OMS – Diane Murrell (Texas Children’s) and Kitty Petty (Boston Neurology)
  • Opsoclonus Myoclonus Ataxia Family Symposium – Outcomes and Transition – Tim Lotze, M.D.  (Texas Children’s)
  • OMS: What We Know, What We Don’t Know – Wendy Mitchell, M.D. (Keck School Of Medicine, Children’s Hospital Los Angeles)
  • Appley Ever After – The Bruland Family’s OMS Adventure

Other Conference Documents

  • 2014 OMS Life and CHLA Caregiver Conference – May 2014.pdf
  • 2015 OMS Gilbert CCHMC Presentation – 4.11.2015.pdf
  • OMA conference 04 11 15parents – Brian Weiss – 4.11.2015.pdf
  • OMS lecture – Allen DeSena – 4.11.2015.pdf
  • Psychological Aspects of OMS – Wendi Lopez – 4.11.2015.pdf
  • Dinae Murrell Oma November 8 2014
  • Dr Karen Evankovish – OMSLife Neurocognitive Outcome November 8 2014
  • OMA and Neuroblasostoma – Jason Shohet
  • OMS Conference Overview Lotze
  • OMSLife and CHLA Caregiver Conference
  • Opsoclonus Myoclonus Ataxia Family Symposium
  • Opsoclonus Myoclonus Ataxia (OMA) Syndrome and Oncology
  • Opsoclonus-Myoclonus Syndrome: A Neuroimmunologic Enigma
  • OMSLIFE REGIONAL CAREGIVER CONFERENCES BEGIN
  • OMS: Caring for the Whole Child

Our mission is to raise awareness of Opsoclonus Myoclonus Syndrome, maintain a support network for caregivers, and fund research for a cure.


Contact US

EMAIL info@omslifefoundation.org

The OMSLife Foundation

P.O. BOX 2899

Cypress,  Texas  77410

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