Some key resource information for caregivers and patients include the following:

National Pediatric Myoclonus Center – www.OMSUSA.org

National Organization for Rare Disorders (NORD) – www.rarediseases.org

OMSLife wikibook – https://en.wikibooks.org/wiki/OMS_Manual

Dancing Eyes Support Trust (UK) – http://dancingeyes.org.uk/

Flights to hospitals for OMS patients in need – http://www.palservices.org/