- 7:30-8:15AM – Registration and breakfast
- 8:15AM – Intro Video
- 8:20AM – Keynote Speaker – Brian Cisneros
- 9:00AM – Dr. Wendy Mitchell – Childrens Hospital Los Angeles
“OMS: What We Know, What We Don’t Know” - 10:00AM – BREAK
- 10:15AM -Dr. Angela Waanders – Children’s Hospital of Philadelphia
“The Holistic Treatment of the OMS Patient and Trends Based on Developments with Other Diseases” - 11:15AM – Dr. Yasmin Khakoo – Memorial Sloan Kettering Cancer Center, NYC
“Outcomes of Children with Opsoclonus Myoclonus Syndrome and Neuroblastoma: the MSK Experience 2000-2018” - 12:15PM – LUNCH
- 1:00PM – Dr. Mark Gorman – Boston Children’s Hospital
“Results of Study on OMS Relapses”
“Proposal for International OMS Clinical Registry and Bio Bank”
“Information on Dr. Kiran Maski Sleep Study of OMS Patients” - 2:15PM – Panel Discussion #1—Relapses
OR
Panel Discussion #2—What I’ve learned about Handling OMS - 2:45PM – BREAK
- 3:00PM – Kitty Petty – Boston Children’s Hospital
“Transition to Adult Care—the OMS Passport” - 4:00PM – Mike Michaelis – The OMSLife Foundation, Cypress TX
“OMS Patient Registry – Current Statistics and Challenges” - 5:00PM – Wrap up
- 7:00PM – Evening event
- 8:30PM – Panel Discussion #3 Transition of Pediatric care to Adult care
- 8:00AM – Panel Discussion #4 on Getting the Services for my Child
- 9:00AM – Sue Rossov—NORD
- 10:00AM – Panel Discussion #5 on OMS Therapies
- 11:00AM – Wrap up / closing comments