OMS Registry

OMSLife Foundation Partnership With NORD

The OMSlife Foundation in partnership with the National Organization for Rare Disorders (NORD) have developed a a Natural History Study for Opsoclonus Myoclonus Syndrome (OMS).   The objective is to provide researchers, OMS clinicians, caregivers, and OMS patients with resource information on the disease.   If you are an OMS patient or are a parent of legal guardian of an OMS patient, you can participate by going to https://oms.iamrare.org/

OMSLife Press Release – February 28th, 2017 – English – PDF Format – Microsoft Word Format

Patient Registry FAQ – English – PDF Format

OMSLife Registry Brochure – English – PDF Format