Some key resource information for caregivers and patients include the following:
The website of the late Dr. Michael Pranzatelli – www.OMSUSA.org
National Organization for Rare Disorders (NORD) – www.rarediseases.org
OMSLife wikibook – https://en.wikibooks.org/wiki/OMS_Manual
Dancing Eyes Support Trust (UK) – http://dancingeyes.org.uk/
Flights to hospitals for OMS patients in need – http://www.palservices.org/
NORD Launches New Program Aimed at Providing Caregivers with Relief