What is The OMSLife Foundation?
The OMSLife Foundation is a non-profit organization whose goal is to help caregivers and researchers in the battle against OMS. Founded in 2012, OMSLife was established after OMS warrior Alexa was diagnosed with OMS and the family found information was lacking and inconsistent. Friends and family have helped build OMSLife into a primary resource of OMS information with a web site, wiki, Facebook groups, You Tube and Twitter.
OMSLife helps caregivers connect with other caregivers in order to find answers to their issues while also developing support networks. OMSLife also helps connect caregivers with OMS specialists and clinicians. This is especially important for caregivers outside of the United States.
What is the mission of The OMSLife Foundation?
Our mission is to spread awareness of Opsoclonus Myoclonus Syndrome, maintain a support network for caregivers, and fund research for a cure.
Are my donations to The OMSLife Foundation tax deductible?
Yes. The IRS designated The OMSLife Foundation a non-profit organization in 2012 with donations tax deductible.
What percentage of my donation goes to the objectives of your mission statement and what percentage goes to the overhead?
We make every effort ensure that donations given to The OMSLife Foundation go to research, awareness campaigns, and
maintaining the support network for the OMS caregivers. Since our inception in 2012, our administrative costs such as
web site domain, printing, postage, office supplies, and even fees for Paypal and credit card donations have been
underwritten by an anonymous donor. This means that donations received from you and other generous donors go to
provide many needed services including:
- Hosting our annual caregiver conference
- Co-hosting the International OMS Medical Workshop
- Development of the NORD OMS Patient Reported Registry
- Grants for research